Jessie Gruman
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New York, NY
$500 - $1,000
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No resources available at this time.
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- Communication
- Disclosure
- Medication Management
- Partnership for Patients
- Patient and Family Involvement
- Patient Experience
- Quality and Patient Safety
- C-Suite
- Hospital Leadership
- Nursing Leadership
- Nursing Staff
- Patient Advocates
- Patients
- Physicians
- Providers
- Trustees and Governance Boards
I was first diagnosed with cancer at age 20 and spent two long years in treatment. Since then, I have been treated for three additional different cancers, a serious heart condition and all the chronic and acute illnesses produced by that many diagnoses and that much treatment.
After finishing my first cancer treatment, I looked back at the experience and realized how much its success depended on me: I had to show up for the treatments, take the pills and get the tests. If I didn't, all the drugs and technologies, all the wisdom and skills wielded by my doctors would have no effect on my cancer. This insight is the basis of my commitment to help people understand their roles as patients and to act knowledgably to find good health care and make the most of it.
In 1992, I founded the Center for Advancing Health (www.cfah.org), a non-profit organization in Washington, D.C., with support from the MacArthur Foundation in order to embody that commitment. In my role as President of CFAH, I serve as a patient adviser and board member to public and private national health research, health care and health policy groups.
I speak and write from the perspective of a patient seeking and using health care. I base my comments on my own unfortunately extensive health history, close reading of the scientific literature, opinion surveys, focus groups and interviews with hundreds of patients about their experiences with health care.
I frequently speak to audiences of health professionals, policy makers, administrators and payers about patient engagement, that is, how can they encourage and help us to participate more actively in our health and health care. Research conducted at the Center for Advancing Health has identified the specific tasks each of us patients must take on to benefit from our care. These are described in the Engagement Behavior Framework (listed in "Speaker Resources").
My remarks address how innovations such as patient-centered care, the Patient-Centered Medical Home, Electronic Health Records and other health information technologies, self-management, shared decision making, care coordination, cancer survivorship, team care, evidence-based care, comparative effectiveness research, incentives and employer-based programs can support us in taking very specific actions in order to benefit from health care.
My talks to the public generally or patients specifically often touch on these issues, but are shaped to meet the concerns of the audience, describing barriers we all face, telling stories about how I and others have addressed them, what we have learned and what each member of the audience can do.
I believe that health care is a shared enterprise: that my clinicians can't ease my pain or cure my diseases without my participation, just as I would not be here today without theirs. My aim is to encourage professionals and patients to find a common understanding of their shared challenge with the aim of helping each individual live well for as long as possible.
I blog weekly at www.preparedpatient.org about what it takes for me and the hundreds of people I have listened to find good health care and make the most of it.
Center for Advancing Health - People's engagement in their health care. http://www.cfah.org/about/welcome.cfm
Prepared Patient Forum - What it takes to find good care and make the most of it.
http://youtu.be/6rWKPGvue1c
Interview with Charlie Rose and Jessie Gruman on AfterShock: What to Do When the Doctor Gives You -or Someone You Love- a Devastating Diagnosis
http://www.charlierose.com/view/interview/8591
Eugene Public Library - AfterShock Book Talk
http://www.aftershockbook.com/video_index.php?key=video
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Jessie Gruman is president and founder of the Center for Advancing Health, a nonpartisan Washington-based policy institute funded by foundations and individuals in 1992 to work on patient engagement: people will not benefit from the health care available to them unless they can participate fully and competently in it. Dr. Gruman draws on her own experience of treatment for four cancer diagnoses, surveys, peer-reviewed research and interviews as the basis of her work to describe – and advocate for policies and practices to overcome – the challenges people face in finding good care and getting the most from it.
Dr. Gruman has worked on this same set of concerns in the private sector (AT&T), the public sector (National Cancer Institute) and the voluntary health sector (American Cancer Society). She attended Vassar College (BA) and Columbia University (PhD, Social Psychology) and is a Professorial Lecturer in the School of Public Health and Health Services at The George Washington University. She serves on the board of advisers of the Center for Medical Technology Policy, the Technical Board of the Milbank Memorial Fund and the board of trustees of VillageCare in New York City.
Dr. Gruman was honored by Research!America for her leadership in advocacy for health research. She has received honorary doctorates from Brown University, Carnegie Mellon University, Clark University, Georgetown University, New York University, Northeastern University, Salve Regina University, Syracuse University and Tulane University, and the Presidential Medal of The George Washington University. She is a Fellow of the Society for Behavioral Medicine and a member of the American Academy of Arts and Sciences and the Council on Foreign Relations.
Dr. Gruman is the author of The Experience of the American Patient: Risk, Trust and Choice (Health Behavior Media, 2009); Behavior Matters (Health Behavior Media, 2008) and AfterShock: What to Do When the Doctor Gives You – or Someone You Love – a Devastating Diagnosis (Walker Publishing, second edition, 2010), as well as scientific papers and opinion essays and articles. She blogs regularly at www.preparedpatientforum.org.
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